let's recode relationships
The following is a representation of organizations that offer resources and information for patients, families, and caregivers living with cerebral adrenoleukodystrophy, transfusion-dependent beta-thalassemia, and sickle cell disease.
Bone marrow transplant resources
Genetic & rare disease resources
bluebird bio worked with ALD families to develop this informational site, which includes support and resources for building a care team and connecting with the ALD community. This website is for residents of the United States only.
Aidan Jack Seeger Foundation
Associazione Italiana Adrenoleucodistrofia Onculus
Ethan Zakes Foundation
European Leukodystrophy Association
Leukodystropy Family Forum
Leukodystrophy Research and Resource Organization
Stop ALD Foundation
United Leukodystropy Foundation
World Leukodystrophy Alliance
bluebird bio sponsors this informational site for people living with Transfusion-Dependent Beta (β)-Thalassemia (TDT) - including resources for setting goals and talking to your doctor about your medical care. This website is for residents of the United States only.