Young boy playing with brightly colored building blocks
one of the worst parts is
not knowing where to turn,
how to get in touch with the
right people who

let's recode relationships

patients & advocacy

Why we fly

We’re working to recode medicine and the course of genetic diseases based on the transformative potential of gene therapy. Just imagine the power of a new treatment option for families and people living with a severe genetic disease and you’ll understand why. But to be truly successful, we must fully understand and consider the needs and preferences of the communities we serve.

We’re committed to recoding science so we can help rewrite the stories of those living with severe genetic diseases

If you’re interested in learning about our activities within the patient community, please contact By providing your information, you agree to allow bluebird bio to collect the name and email address provided and to be contacted by bluebird bio and its partners using this information.

Meet the Advocacy team

The best results come from collaboration.

Explore helpful organizations

Find information from around the world for the diseases we focus on.

Review our access policy

At this time, clinical trials are the best way to access treatment.

bluebird bio Community Update

For the cALD and beta-thalassemia communities in the EU