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Newborn Screening Toolkit for Adrenoleukodystrophy
The newborn screening for adrenoleukodystrophy advocacy tool kit is an empowering and educational resource created by bluebird bio in collaboration with patient advocacy organizations and advocacy leaders to raise awareness of adrenoleukodystrophy (ALD) and the life-saving opportunity newborn screening (NBS) can provide. [Download PDF in full]
There are plenty of ways for you to get involved and make a difference. Your voice is powerful. Your story is personal. Discover the ways you can start a newborn screening advocacy campaign for ALD through examples on how to craft and share your message while connecting information to decision makers who can help you engender change.
Get to know resources, such as patient advocacy organizations, where you can find additional information and support in your journey to advocate for change.