Patients & Families

relationships with orgs

bluebird bio is proud to work with patient organizations and support their missions to improve the understanding of unmet patient needs, bring awareness across the healthcare system, and empower the patient voice. We are committed to maintain the independence of the patient organizations and be transparent in our interactions with them. Below is a breakdown of the support bluebird bio has provided to patient organizations in the United Kingdom during the 2017 calendar year.

Name of Beneficiary Institution Program / Project Description Support Type Country Currency Individual Payment Amount
ALD Life Support of the organization’s mission to advance awareness and education around Adrenoleukodystrophy Disease in the UK and Europe Financial Support UK GBP £15,358.40
UK Thalassemia Society Support of the organization’s mission to advance awareness and education around Thalassemia Disease in the UK and participation at the Thalassemia International Federation Conference Financial Support UK GBP £15,455.40
Rare Disease UK UK Rare Disease Advocacy Campaign Financial Support UK GBP £5,000.00
Genetic Alliance Patient Charter Workshop: Newborn Screening in the UK Financial Support UK GBP £6,250.00